The LPL Deficiency Association is a patient organization under formation for those living with lipoprotein lipase deficiency (LPLD) in the United States.  It aims to provide connection, support, education and information to patients, caregivers, researchers and other stakeholders interested in or impacted by LPLD.

The National Organization for Rare Disorders (NORD), a 501(c)(3) patient advocacy organization, is supporting the development of this organization and seeking participation from patients and caregivers. To learn more about NORD visit

Are you or someone you know living with lipoprotein lipase deficiency (LPLD)?

People living with rare diseases can feel isolated as they struggle to find information and connect with others like themselves.  Our hope is to connect the LPLD community to reduce those feelings of isolation and help to build a community of support.

If you are interested in joining this community or getting involved with the organization:





Do you know the symptoms that might indicate your patient has LPLD?

The LPL Deficiency Association helps support medical professionals with online and downloadable resources and materials including our physician guide, informational handouts, medical articles and information on diagnostic testing.



You can improve a life. Help an LPLD patient and their family by raising awareness, volunteering your support, helping us to spread knowledge and information, and even by making a donation.




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